This inspiring film brings hope to parents and caregivers of children who are “different”. It focuses on individuals and families learning to live with a little-known and potentially fatal connective tissue disorder, Marfan Syndrome. People with the condition are frequently tall, with disproportionately long arms and legs. Young people, especially, are challenged by looking different than their peers. ‘In My Hands’ asks the universal questions. Who am I? What am I? Different, and that’s ok..Dancer and choreographer Ann Reinking, whose son Chris is affected with the condition, works with a group of teenagers, designing movement and dance that capitalizes on their long bodies and inspires their self- esteem.
Summary info for schedule – will be hidden on film page
In My Hands: Marfan Syndrome
55-minutes
In My Hands is a documentary created by filmmakers Brenda Siemer Scheider and Emma Morris, and produced by Tony Award winning dancer and choreographer, Ann Reinking. Ann’s story is that of her 17 year old son, Christopher, who has Marfan syndrome, a life-threatening disorder of the connective tissue. A child’s body becomes really long and tall. Undiagnosed aortic aneurisms become a fatal threat. By following the stories of several families, the film weaves equally the complex threads of learning to live with Marfan syndrome and all those affected by it. We see the despair and loneliness of trying to “fit in” against what is deemed normal. And we are moved by the hope and inspiration in finding a unique beauty within oneself. In My Hands asks the universal questions for children.
Who am I anyway? Where am I ? And what am I?
Different, and that’s ok..
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In My Hands: Marfan Syndrome
Filmmakers
Filmmaker info pending
Running Time
55 minutes
In My Hands: Marfan Syndrome
Film details
Year(s) screened
- 2010
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