In My Hands: Marfan Syndrome

This inspiring film brings hope to parents and caregivers of children who are “different”. It focuses on individuals and families learning to live with a little-known and potentially fatal connective tissue disorder, Marfan Syndrome. People with the condition are frequently tall, with disproportionately long arms and legs. Young people, especially, are challenged by looking different than their peers. ‘In My Hands’ asks the universal questions. Who am I? What am I? Different, and that’s ok..Dancer and choreographer Ann Reinking, whose son Chris is affected with the condition, works with a group of teenagers, designing movement and dance that capitalizes on their long bodies and inspires their self- esteem.